Travelling with a stoma can feel daunting, especially the first time. But for Ambassador Albie and his family, their recent trip to Cyprus proved that with the right preparation, nothing has to hold you back. Here, Albie’s family share their experience, from planning and packing to enjoying the sunshine, along with their top tips for other ostomates.
When you first planned your holiday, what were your biggest considerations as a family travelling with a stoma?
The biggest consideration was where to travel. We didn’t want Albie’s first holiday with a stoma to involve a long-haul flight or a destination where stomach issues might be more likely. We chose Cyprus because the flight was only four hours and the medical care there is excellent. Now that we’ve travelled with his stoma, we know long haul would be no issue. We also booked with an amazing travel agent, Carmen, who supported us with all of our needs. It was reassuring to have someone who understood what we needed and could help arrange everything.
How do you prepare for a trip? Do you have a holiday packing checklist for stoma supplies?
Yes, I made a list of everything Albie would need, plus extras. I placed an order a month before we flew, giving us time to resolve any issues. Working through the checklist made packing much easier.
Do you take extra supplies with you, and if so, how do you decide how much to pack?
We asked our Instagram community for advice, and most suggested taking double the amount you’d normally use. For our two-week holiday, we packed 60 bags, which was more than enough, but better to have them and not need them than risk running out.
Any tips for storing stoma products safely in hot climates?
We didn’t experience any issues. We kept the products in the bathroom, which had air conditioning, and that worked perfectly.
How do you handle airport security when travelling with a stoma?
The best thing we did was arrange special assistance with Carmen’s help. EasyJet and Gatwick Airport were fantastic. We were given a companion to guide us through security, and when Albie explained to the staff that he had a stoma, they took him aside for a quick, discreet check. They were brilliant with him.
Do you have any advice for carrying supplies in your hand luggage?
Yes, arrange a medical bag. With special assistance, we were allowed an extra 10kg medical bag in addition to our normal hand luggage. I took all of Albie’s supplies as hand luggage, as I didn’t want to risk losing them.
What else did you do before your holiday to prepare?
Before we flew, I spoke to Albie’s stoma nurse, who provided a letter confirming he had a stoma and listing considerations to support his needs. My advice is to gather as much proof and documentation as possible because it doesn’t hurt to have it just in case.
What’s your approach to managing stoma changes while you’re out exploring?
Changes were very regular on holiday. The sea and pool water could have potentially irritated Albie’s skin, so he changed his bag daily. The extenders worked well during the day but expanded in water, so they couldn’t be worn longer-term. On days out, Albie changed before leaving and carried extra supplies with him. The disabled toilets in Cyprus were so clean that emptying was easy and stress-free.
Has going on holiday helped Albie feel more confident living with a stoma?
Absolutely. Albie’s confidence shone through. He wore his usual shorts and had Fuller (his stoma) on full view. People looked, but it didn’t bother him, he understands it’s different, and we love that it doesn’t stop him from living life like any other 17-year-old on holiday. He was truly living his best life!
How do you balance enjoying the holiday while keeping on top of stoma care?
Stoma care was important to prevent skin flare-ups from sea water, pool water and sun cream. Albie cleaned his skin carefully and changed his bag at least once a day. Regular changes made a big difference, as sore skin can be very difficult to heal.
Do you have any tips for other families who are planning a trip away?
Order double the supplies, and get them early in case you need to add more. We also packed bed mats to protect the bed in case of leaks, and the housekeeper even added a mattress protector when she saw them. This didn’t bother Albie at all, he preferred the peace of mind. Toilet wipes were also really useful when out and about, as they’re quicker and easier than tissue.
Did you try any new foods or activities during your holiday?
Yes, during Albie’s long hospital stay, we promised him a tomahawk steak on holiday. In Cyprus, he ordered a 32oz tomahawk steak and ate the whole thing! The waiter couldn’t believe it, and it was amazing to see him enjoy something he’d looked forward to for so long – he got his wish!
And finally… what’s been your favourite holiday memory?
Our favourite moment was when Albie’s sister and fiancé surprised us by joining for the second week. After such a tough few years, having the whole family together made the holiday complete. Fuller gave us the chance to finally go away and enjoy a fun summer holiday. We’ll be forever grateful!
Albie’s first holiday with his stoma was a huge success. With careful planning, the right support, and a positive outlook, the family were able to relax, enjoy the sunshine, and make unforgettable memories. Their experience shows that with preparation, a stoma doesn’t have to hold you back from exploring the world and living life to the fullest!
