We’re thrilled to introduce Kathryn, our newest Oakmed ambassador, who is sharing her personal experience of life with a stoma.
Adjusting to life with a stoma can be a journey filled with challenges, growth, and newfound freedoms. In this honest Q&A, Kathryn opens up about her journey – from her long battle with endometriosis, to the life-changing benefits of her stoma, and how she’s using her platform to support and inspire others. She also shares her top tips, insights on confidence, and the importance of finding the right stoma products.
Read on to learn more about Kathryn’s journey and how she’s embracing life with her stoma!
Can you share your personal journey with a stoma and how it has impacted your life?
For the past 15 years, I struggled to get my endometriosis properly diagnosed and treated. In August 2024, I had a loop colostomy due to ongoing bowel endometriosis and complications from multiple surgeries.
Since then, my quality of life has improved dramatically. I can eat properly for the first time in years, my chronic pelvic pain is more manageable, and I feel healthier overall. Having a stoma hasn’t stopped me from doing anything – in fact, I’m more active now than I was before!
How has your outlook on life changed since your surgery?
My outlook has become more positive now that I’m in less pain and able to eat better. I’ve also found myself becoming more sociable, as I feel mentally stronger and happier. It feels like my world is opening up again after years of feeling limited.
What are your top three tips for someone who is newly adjusting to life with a stoma?
- Don’t over-research before surgery. It can be overwhelming, and much of what you read focuses on worst-case scenarios. I chose to learn as I went, and that worked well for me.
- There’s no right or wrong way to adjust, just what works for you. It takes time, but with the right products and support, things get easier.
- Find a local stoma support group. Connecting with people who understand what you’re going through can be so helpful, and even fun!
How do you talk to friends, family, or even strangers about your stoma? Any advice for making those conversations easier?
I try to be honest about how I’m feeling. If I’m struggling, I tell people how it affects me rather than bottling it up.
When it comes to stoma noises, I laugh about it! If it happens around friends, I joke that they can take the blame. At home, I blame the cat! My 12-year-old son has known about my stoma from the start – I’ve always kept it simple and honest with him. He understands why I have it and how it helps me.
What’s a hobby or activity you’ve discovered or enjoyed more since your surgery?
Since surgery, I’ve loved connecting with other ostomates through a group called Stoma Sisters. I’ve met so many incredible women with endometriosis, and together, we’ve worked hard to raise awareness.
How do you support and inspire others who are new to living with a stoma?
On Instagram, I keep a balance between reality and positivity. I share the good and bad, because I want to show that while having a stoma isn’t always easy, it’s also not something to be ashamed of.
One of my most powerful moments was posting a bikini photo with my bag on show. I was blown away by the positive reactions! It made me realise how important it is to normalise stomas.
I also create content that encourages people to get outside and experience the mental and physical benefits of nature and cold-water swimming. But at the same time, I remind people that not everything on social media is real, bad days happen too, and that’s okay.
What are your goals or aspirations for the future, both personally and as an ostomate?
I just want to keep living my best life while managing my health. I plan to:
- Keep sea swimming.
- Make more time for friends and socialising.
- Continue raising awareness of endometriosis and stomas.
- Inspire others by showing that a stoma doesn’t define you – you can still do what you love!
What’s one thing you wish everyone knew about living with a stoma?
A stoma will settle down and you can have a manageable routine, but that doesn’t mean it’s always easy. Some days are great, while others can be frustrating. It’s an ongoing journey with ups and downs, and how we feel about it can differ from one day to the next.
Have you tried, or do you currently use Oakmed products?
Yes! A few months ago, I switched to Oakmed’s Alginate Convex bags, and they have really helped.
I was struggling with a painful rash under the plate, nothing worked, and I was sent so many different products that it became overwhelming. My stoma nurse then recommended a different bag, and I remembered that I had trialled Oakmed’s Alginate bags as a free sample.
I asked to switch, and it was the best decision. The bags solved my rash issues, which means I can put my bag on and forget about it for the rest of the day.
Looking to try Oakmed products? Get in touch for free samples today!
Thank you, Kathryn, for sharing your inspiring journey! If you’re adjusting to life with a stoma, remember you’re not alone, and support is always available.
Make sure to give her a follow on Instagram @my.cornish.life
